Talked to Kim today to ask how things went at the Mayo Clinic. She said,
"It's not good." She has a diagnosis of POEMS syndrome - which is a very
rare blood condition. You can google it - and you won't find it very
encouraging. There is no cure, and most patients become bedridden
eventually. There are 100 known cases in the US.
I did find a kind of positive little video and the link is above.
But even in the positive video, the person is in a wheelchair (after a
bone marrow transplant). Bill and Jan are in Manistee with them right
now, and we're going over to give her a hug tomorrow. They are kind of
in upheaval getting ready to move - they've been packing all week. Kim
may stay with her folks for treatment in Ann Arbor depending on test
results. Michael has to leave next week to start his new job in CA.
http://www.medicaledge.org/2006may-4.html
